10/19/2011

It's been a hard struggle this time around. It seems we're doing more fighting with the hospital than Liam is getting care. Their just trying to treat him like a normal kid and pretend he doesn't have CDH. It's B.S.. They just keep shouving food down him, putting him in pain. He spends all night during his continuos feeds fussy and cranky. I spend that time holding him and comforting him. He vommited again tonight. We were only half through his feed when he lost it. It looked like old curddled milk, even the PCT comitted that it looked wrong. That was arpund 4:30pm. His doctors here at Childrens never came in to talk to us. We can't get any doctor to sit down and talk to us to brainstorm or come up with a game plan. They wanted to discharge us today but we refused to let them after he vommited last night. We told them that we weren't taking him home until he was on full feeds and held them down for 24 hours. Suddenly after that converstation they were forcing 70mls down him when he was only taking 60mls before. They're trying to rush us out and not fix the problem that Liam has. I've been arguing with Justin over what I think is best for his health care. We're trying to do everything we can to do whats in the best interest for Liam and sometimes that means comprimissing. I aggreed to let Valley Childrens try to fix Liam. Now were trying to figure out what our next move is. We've talked to the charge nurse, on call doctor and a social worker tonight about our concerns and it seems were wasting our breathe. I pray tomarrow will yeild more answers and a solution. Liam is in God's hands and I pray that God leads us to make the decisions that are right for him. To think this all started because Liam cought a cold while at UCSF. I think thats why it's been a hard decision to make on wether or not to take him back there. Please keep Liam in your prayers.